My endometriosis journey: Hayley’s story


For a decade, Hayley suffered crippling signs with out realizing what was fallacious. Identified ultimately, she is now in a position to management the situation that was ruining her life, and makes use of her information and experience to assist others

The primary signs of endometriosis – a situation the place tissue just like the liner of the womb begins to develop elsewhere, such because the ovaries and fallopian tubes – began to indicate after I was 13 years previous. I didn’t know what a ‘regular’ cycle was, and every month I dreaded my interval. I skilled heavy bleeding, cramping in my stomach, and blood clots.

Through the years, my signs acquired worse, and I’d miss college and social occasions because of the insufferable ache that made me sick and collapse, usually leaving me bedridden for days at a time.

For greater than a decade I went backwards and forwards to the medical doctors, and was advised that what I skilled every month was ‘hereditary interval ache’. I even acquired requested: “Are you a hypochondriac?” I felt nobody actually understood what was occurring, or what I used to be going by way of.

Examinations by my GP would finish with: “It’s interval ache, and sadly, hereditary.” One other prescription of codeine could be handed over. I used to be placed on treatment and contraception to assist handle the ache, which might masks the signs for a short time, just for them to return worse than earlier than.


After graduating from performing arts school in 2007, I moved to London to embark on a profession in TV. Throughout this time, the ache I skilled when my interval arrived was insufferable. I used to be unable to stroll, unable to even carry myself to the lavatory. I’d take days off because of the ache. This ultimately led me to give up my job after I used to be advised to “man up”, and “You don’t even look sick.” I made a decision to go away London and take a while out, as my bodily and psychological well being was at an all-time low.

Throughout this time, I lived within the French Alps and I labored as a chalet chef, the place I developed my love for baking and cooking. I then travelled and ate my method round south-east Asia.

After I returned from my travels, I started work in a company setting. Regardless of having lived with endometriosis signs for a few years, it was a morning commute which lastly began my journey in direction of a analysis.

After stepping off the practice, I felt a ache in my left ovary. It felt like one thing had burst into flames and unfold round my decrease stomach and throughout my again. I in some way managed to stroll to the workplace and the following factor I knew, I used to be behind an ambulance being advised I had suspected appendicitis. I used to be X-rayed, had exams, and was assessed by totally different medical doctors. Lastly, one mentioned: ‘‘You’ve most likely skilled a ruptured cyst.” After that, I used to be discharged.

Drained and deflated, I began to imagine I used to be a hypochondriac. I took issues into my very own fingers and booked an appointment with a personal gynaecologist. She assessed me, spoke with empathy, and really useful I’m going for meals allergy exams and an inside ultrasound scan.

On the scan, they detected some cysts on each ovaries. I used to be advised they had been comparatively small, however that it could be wise to have them eliminated. They booked me in for keyhole surgical procedure a few months later, however the surgical procedure revealed I had a cyst 10 occasions the dimensions that they had estimated. My left ovary was broken, and a few of it was eliminated throughout surgical procedure, together with the cyst and the endometrial tissue rising round my fallopian tubes and womb.

It was now obvious that I’d been affected by extreme endometriosis for 10 years. My gynaecologist mentioned she had by no means seen a misdiagnosed case like mine earlier than. I’d suffered in silence, undiagnosed for a decade, with one of many worst instances of ‘endo’ she had ever seen.

After I used to be recognized, my life modified. Now I knew what I used to be battling, I may concentrate on how you can beat it. After I recovered from surgical procedure, I took varied meals allergen exams and my outcomes confirmed gluten sensitivity and lactose intolerance. I began to suppose correctly, for the primary time, about diet, and the integral function it performs in well being and wellbeing. I additionally learn every part I may about endometriosis.

Though there’s nonetheless no remedy for ‘endo’, I discovered that after I minimize out all wheat, gluten, dairy, and processed meals, some signs had been eradicated, and slowly I started to take management of my physique by way of the therapeutic energy of meals, and acquired again that glow I’d misplaced.

“I’ve been in a position to flip one thing that when had a massively destructive influence on my life, into a very optimistic one”

Meals and travelling have at all times been two of my greatest passions, and in 2014 I left the UK as soon as once more to discover Indonesia, Australia, New Zealand, and a few South Pacific Islands. I finally ended up residing in New Zealand, and it was there that I found extra methods to nourish my physique with meals that left me glowing and rejuvenated.

I grew to become keen about connecting with others and sharing what I had found throughout my journey, particularly with girls that suffer from endometriosis, polycystic ovary syndrome, and different chronic illnesses.

Sadly, in September 2016, I used to be recognized with pre-cervical cancerous cells and underwent remedy that included laser remedy. This contemporary check to my well being led me to return to the UK in June 2017.

I went on to review with the Establishment for Integrative Vitamin to grow to be a licensed and registered well being and diet coach, which deepened my understanding of the significance of meals in managing continual sicknesses. Since graduating in 2018, I’ve labored with girls on a one-to-one foundation, and shared my journey.

Lastly, after a few years of endometriosis controlling my life, I’ve discovered a strategy to management it. I’ve been in a position to flip one thing that when had a massively destructive influence on my life, into a very optimistic one. How? By means of the therapeutic energy of meals and listening to your physique.

The journey to managing the signs of endometriosis can really feel extremely isolating at occasions, and for anybody going by way of it, I say: by no means hand over till you get a analysis, and by no means accept something under your requirements.

Rav Sekhon | BA MA MBACP (Accred) says:

Hayley’s inspirational story highlights the true problem of residing with endometriosis, particularly when it has been recognized for plenty of years, it’s evident this had a major influence on her well being. In time, and with the right medical assist, Hayley was in a position to get the assistance she wanted. Hayley’s life expertise now drives her ahead to assist different folks – her ache has now grown right into a supply of energy.

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